Wow, we just got back from an amazing week at Camp Sunshine in Casco, Maine. It’s not just about the fun activities and plethora of friendly volunteers but the incredible sense of community and support. This is a place where the kids, patients and siblings alike, are embraced for who they are and encouraged in everything they do. By the same token, parents are able to come together and share their stories, fears, insights, and anything else that comes up. Dealing with life threatening illness has a tendency of beating up every member of the family, often in tiny, invisible increments. Continue reading Taking a Plunge
Latest Blog Posts
Intersections and Digressions of Math and Life
Thanksgiving is easy. With so much to be thankful for, our feelings of gratitude are readily at hand. Continue reading Intersections and Digressions of Math and Life
Indestructible
Before launching into the latest long-overdue update, I want to post information about the 2011 St. Jude Give Thanks. Walk that is taking place across the country this weekend. We are going to New York City on Saturday, November 19, to support the hospital in a walk across the Brooklyn Bridge. If anybody can join us or participate in one of 80 cities across the country, we encourage you to do so. Also, please consider a donation to St. Jude (our fundraising page). Not only do we know from personal experience what an amazing place it is, but independent research demonstrates that St. Jude is a quality charity. The hospital received a top rating on Charity Navigator because it has proven that dollars donated equate to dollars spent helping the kids. Now back to our regularly scheduled programming…
After getting news of another stable scan at the end of June, we returned home to start off a busy summer. Continue reading Indestructible
Summer Kick-Started with a Scan
Even on the cusp of summer, Memphis is unforgivingly hot, but the weather is nearly irrelevant when you’re back for check-ups at St. Jude, which we were at the end of June. Continue reading Summer Kick-Started with a Scan
Happy Birthday, Colin!
Today, Colin turned four. Continue reading Happy Birthday, Colin!
Full Circle
Colin returned home, nearly a year from the completion of radiation and two months short of his fourth birthday, with a good scan and no trach. Continue reading Full Circle
True North
Colin is in remission, and it now seems easier to utter the words aloud. His scan from January was still “stable,” with Dr. Gajjar now asserting that the sliver of “whatever” that cradles Colin’s brain stem is scar tissue. Continue reading True North
Finding the Narrow Path
Life is normal, or at least a simulacrum of normalcy that is close enough to count. Continue reading Finding the Narrow Path
Latest Photos
[imagebrowser id=14]
Put Me in, Coach
As Colin’s trajectory moves unevenly but steadily upward, we have also been taking him out into the world to finally do what he could not a year ago. Continue reading Put Me in, Coach