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Latest Blog Posts

You Should See the Other Guy

Colin’s surgery on Monday went swimmingly, a marvel of coordination between the general surgery and neurosurgery teams. Continue reading You Should See the Other Guy

Levy Butt Paste

The weekend has been eventful in many ways, and Colin now hovers at the brink of the next step in his treatment, installation of the shunt and replacement mediport. Continue reading Levy Butt Paste

Still in the Klink

We have definitely deferred bringing Colin “home” to the Target House until we (read: the medical team) have resolved some of the lingering issues whose causes are not 100% certain. Continue reading Still in the Klink

Kiss Your Baby Now

Life in the hospital always has an underlying tension, as the situation can change dramatically over the course of days or moments. Continue reading Kiss Your Baby Now

A Room With a Poo

Colin finally found a way to get private digs at the hospital, but the unfortunate price is the contraction of a highly contagious infection. Continue reading A Room With a Poo

(little)manscaping

Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. Continue reading (little)manscaping

Two Steps Forward…

Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough. Continue reading Two Steps Forward…

New Belly Button

On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button

Our GiantKid

Today, among other things, the family went off to a Ronald McDonald House outing for GiantKids (children with cancer). Continue reading Our GiantKid