Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough. Continue reading Two Steps Forward…
Category: Radiation
New Belly Button
On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button
Morning Post-Op Recovery
Colin continues to do well post-operatively. Continue reading Morning Post-Op Recovery
In Good Hands
Colin just went into surgery and we should expect to hear word from Dr. Wisoff on the success of the resection from him. Continue reading In Good Hands
Bound for the Big Apple
Today, we made a big decision regarding Colin’s treatment: we will be taking him to New York City for surgery on Wednesday by Dr. Jeffrey Wisoff of NYU. Continue reading Bound for the Big Apple
Making Pinocchio a Real Boy
Colin has really enjoyed becoming a boy again, rather than a patient or freak. Continue reading Making Pinocchio a Real Boy
…And Still Planning
Today, we had the meeting with the surgeons and oncologist to discuss our treatment plan for Colin. Continue reading …And Still Planning
Homeward Bound-ish
On Thursday morning, the neurosurgery team decided to clamp Colin’s drain to see how the intracranial pressure fares. Continue reading Homeward Bound-ish
Changes and new experiences
Monday was a whirlwind. Continue reading Changes and new experiences
We Don’t Need Roads
“Where we’re going, we don’t need roads.” — Dr. Emmett Brown, Back to the Future