Breathing Easy

Colin is in the ICU recovering from the installation of a trach tube. He also has a new MRI done this morning and we will discuss the results of that when Dr. Gajjar is back in town next week. Continue reading Breathing Easy

Still in the Klink

We have definitely deferred bringing Colin “home” to the Target House until we (read: the medical team) have resolved some of the lingering issues whose causes are not 100% certain. Continue reading Still in the Klink

(little)manscaping

Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. Continue reading (little)manscaping

New Belly Button

On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button

Signs and Omens

The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable. Continue reading Signs and Omens