MIDDLE
We are in the middle. Continue reading Beginning, Middle, End
Category: Neurological Deficits
The Little Engine
Colin has made some big leaps ahead, and we can now really see the strength of his determination. Continue reading The Little Engine
Up and Away
Colin has done well through the methotrexate. Continue reading Up and Away
Breathing Easy
Colin is in the ICU recovering from the installation of a trach tube. He also has a new MRI done this morning and we will discuss the results of that when Dr. Gajjar is back in town next week. Continue reading Breathing Easy
A *What* Transplant?!
Today, we continued to put Colin through the paces. Continue reading A *What* Transplant?!
(little)manscaping
Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. Continue reading (little)manscaping
Two Steps Forward…
Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough. Continue reading Two Steps Forward…
New Belly Button
On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button
Awaiting the G-Tube
On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. Continue reading Awaiting the G-Tube
Signs and Omens
The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable. Continue reading Signs and Omens