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Indestructible

Before launching into the latest long-overdue update, I want to post information about the 2011 St. Jude Give Thanks. Walk that is taking place across the country this weekend. We are going to New York City on Saturday, November 19, to support the hospital in a walk across the Brooklyn [...]

Full Circle

Colin returned home, nearly a year from the completion of radiation and two months short of his fourth birthday, with a good scan and no trach.

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True North

Colin is in remission, and it now seems easier to utter the words aloud. His scan from January was still “stable,” with Dr. Gajjar now asserting that the sliver of “whatever” that cradles Colin’s brain stem is scar tissue.

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No, No, No, How are You Doing?

Perhaps I was naively unconcerned about Colin’s latest scan.

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Happy Mother’s Day

Mother’s Day is billed as an opportunity for fathers and children to express their gratitude for the other 364 days a year that mothers devote to their families.

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Reset Button

Colin’s second week of radiation was grueling: vomiting, utter fatigue, dangerous aspiration and an unexpected stay in the hospital.

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The Little Engine

Colin has made some big leaps ahead, and we can now really see the strength of his determination.

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Iron Man, not Iron Lungs

Colin has finished the methotrexate infusion that kicked off the second round of chemo.

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Hello, Neutropenia!

Initially, the reluctance to release Colin from the hospital was related to timing and the fact that we had still not worked out the kinks with managing his secretions.

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Putting the Fundo to the Test

After Colin’s sudden swelling on Sunday, Monday started off relatively placid.

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