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Colin is in the ICU recovering from the installation of a trach tube.
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Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy.
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Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough.
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On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail.
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The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable.
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Yesterday, Colin was extubated successfully.
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This evening, Dr. Wisoff sat down and showed us the comparisons of the pre-op and post-op MRIs.
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Colin continues to do well post-operatively.
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Dr. Wisoff gave us a quick post-surgical report, even before surgery was over (Dr. Harter was overseeing the closing procedure).
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Describes the immediate neurological effects following Colin’s first surgery and his early [...]
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Support Camp Sunshine: Freezin’ for a Reason Camp Sunshine is an incredible place for families with children with lifethreatening illnesses to find support. It costs $2,000 for a week of camp. Though much of the work is done by volunteers, they provide three meals a day for everybody and much much more.
Please help us keep the wheels turning so we can help make sure more families can experience this wonderful community. We are participating in the New Haven polar plunge on Saturday, February 25.
Visit our fundraising page to donate a few dollars to a great cause (four stars on Charity Navigator, the highest rating they give).
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