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The Little Engine

Colin has made some big leaps ahead, and we can now really see the strength of his determination.

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First Chemo, Then Home

Colin has an official discharge date: Wednesday.

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Up and Away

Colin has done well through the methotrexate.

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Breathing Easy

Colin is in the ICU recovering from the installation of a trach tube.

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A Room With a Poo

Colin finally found a way to get private digs at the hospital, but the unfortunate price is the contraction of a highly contagious infection.

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(little)manscaping

Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy.

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New Belly Button

On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux.

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MRI Comparison

This evening, Dr. Wisoff sat down and showed us the comparisons of the pre-op and post-op MRIs.

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Tuesday Surgery

There is no such thing as certainty.

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Bound for the Big Apple

Today, we made a big decision regarding Colin’s treatment: we will be taking him to New York City for surgery on Wednesday by Dr. Jeffrey Wisoff of NYU.

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