Our little fledgling has returned to Target House for good, following his last inpatient stay at St. Jude (barring unexpected events, of course).
Out of the Nest
Tag: posterior fossa syndrome
Home Sweet St. Jude
Life doesn’t offer real do-overs, but there are times when an experience follows the parallel track of something that has come before. Continue reading Home Sweet St. Jude
I’m In!
The news of the impending loss of Colin’s port was sobering, but we put it behind us as we launched into the holiday weekend.
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Our GiantKid
Today, among other things, the family went off to a Ronald McDonald House outing for GiantKids (children with cancer). Continue reading Our GiantKid
Awaiting the G-Tube
On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. Continue reading Awaiting the G-Tube
Signs and Omens
The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable. Continue reading Signs and Omens
Post-Surgical Review
Dr. Wisoff gave us a quick post-surgical report, even before surgery was over (Dr. Harter was overseeing the closing procedure). Continue reading Post-Surgical Review
Making Pinocchio a Real Boy
Colin has really enjoyed becoming a boy again, rather than a patient or freak. Continue reading Making Pinocchio a Real Boy
…And Still Planning
Today, we had the meeting with the surgeons and oncologist to discuss our treatment plan for Colin. Continue reading …And Still Planning
Still Planning
Tuesday morning, we had scheduled a meeting with the two neurosurgeons and oncologist, but due to logistical snafus, it never took place. Continue reading Still Planning