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Out of the Nest

Colin Mugging for the Camera at Le Bonheur (Post-Ops)

Our little fledgling has returned to Target House for good, following his last inpatient stay at St. Jude (barring unexpected events, of course).

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Home Sweet St. Jude

Life doesn’t offer real do-overs, but there are times when an experience follows the parallel track of something that has come before.

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I'm In!

The news of the impending loss of Colin’s port was sobering, but we put it behind us as we launched into the holiday weekend.

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Our GiantKid

Today, among other things, the family went off to a Ronald McDonald House outing for GiantKids (children with cancer).

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Awaiting the G-Tube

On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail.

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Signs and Omens

The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable.

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Post-Surgical Review

Dr. Wisoff gave us a quick post-surgical report, even before surgery was over (Dr. Harter was overseeing the closing procedure).

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Making Pinocchio a Real Boy

Colin has really enjoyed becoming a boy again, rather than a patient or freak.

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...And Still Planning

Today, we had the meeting with the surgeons and oncologist to discuss our treatment plan for Colin.

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Still Planning

Tuesday morning, we had scheduled a meeting with the two neurosurgeons and oncologist, but due to logistical snafus, it never took place.

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