Colin enjoyed three nights on the prowl (i.e. outpatient) before a planned admission on Friday for chemo to start on Saturday.
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Postings by CategoryArchives |
Colin enjoyed three nights on the prowl (i.e. outpatient) before a planned admission on Friday for chemo to start on Saturday. 0 October 24th, 2009 | Tags: diarrhea, Dr. Boop, Dr. Gajjar, Dr. Wisoff, fundraising, H1N1, Hickman line, hydrocephalus, lumbar puncture, metastasis, St. Jude, subcutaneous port, TPN, VP shunt | Category: Chemotherapy, Diagnosis, Effects of Cancer and Treatment, Lessons on Medicine, Neurological Deficits, Neurosurgery, Occupational Therapy, Post-Neurosurgery, Radiation, Speech Therapy, Treatment, Understanding Hospitals | 5 comments
We have finally figured out an enormously important piece of Colin’s complicated oncological puzzle. 0 August 17th, 2009 | Tags: diarrhea, metastasis, neutropenia, NYU Medical Center, St. Jude | Category: Chemotherapy, Complications, Decisions, Effects of Cancer and Treatment, Second Opinions, Understanding Hospitals | Leave a comment
Well, the official read of Thursday’s MRI is in: no metastasis! 0 August 17th, 2009 | Tags: Mass General, metastasis, NYU Medical Center, proton therapy, St. Jude | Category: Chemotherapy, Decisions, Diagnosis, Interpreting MRIs, Radiation, Second Opinions | Leave a comment
Colorblind James Experience is much more obscure than Paul Simon, but fortunately they have a MySpace page, so anyone unfamiliar with the band can find their tune “Considering a Move to Memphis” online. August 16th, 2009 | Tags: Dr. Finlay, Dr. Gajjar, Dr. Gardner, ependymoma, metastasis, NYU Medical Center, oncology, St. Jude | Category: Chemotherapy, Decisions, Diagnosis, Lessons on Medicine, Second Opinions | Leave a comment
Colin has been at the center of a whirlwind of activity. 0 August 15th, 2009 | Tags: Dana Farber, metastasis, NYU Medical Center, pseudomeningocele, Ronald McDonald House, sibling support, St. Jude, VP shunt | Category: Chemotherapy, Decisions, Diagnosis, Effects of Cancer and Treatment, Interpreting MRIs, Local Color, Perspective on Cancer, Radiation, Second Opinions, Understanding Hospitals | Leave a comment
The weekend has been eventful in many ways, and Colin now hovers at the brink of the next step in his treatment, installation of the shunt and replacement mediport. 0 August 9th, 2009 | Tags: diarrhea, fungemia, metastasis, neurological effects, NYU Medical Center, VP shunt | Category: Chemotherapy, Complications, Effects of Cancer and Treatment, Lessons on Medicine, Understanding Hospitals | Leave a comment
Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. 0 July 31st, 2009 | Tags: Dr. Allen, ependymoma, G-tube, hydrocephalus, insurance, lumbar puncture, Memorial Sloane Kettering, metastasis, NYU Medical Center, steroids, swallowing | Category: Chemotherapy, Decisions, Diagnosis, Effects of Cancer and Treatment, Local Color, Music Therapy, Neurological Deficits, Neurosurgery, Perspective on Cancer, Radiation, Rehabilitation, Understanding Hospitals | Leave a comment
On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. 0 July 24th, 2009 | Tags: Aidan, ependymoma, G-tube, Head Start, hydrocephalus, lumbar puncture, Memorial Sloan Kettering, metastasis, NYU Medical Center, oncology, posterior fossa syndrome, Ronald McDonald House, swallowing, VP shunt | Category: Chemotherapy, Decisions, Diagnosis, Effects of Cancer and Treatment, Music Therapy, Neurological Deficits, Perspective on Cancer, Rehabilitation, Understanding Hospitals | Leave a comment
The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable. 0 July 19th, 2009 | Tags: Aidan, Dr. Wisoff, G-tube, metastasis, neurological effects, posterior fossa syndrome, Ronald McDonald House, swallowing | Category: Decisions, Diagnosis, Interpreting MRIs, Lessons on Medicine, Local Color, Neurological Deficits, Perspective on Cancer, Understanding Hospitals | Leave a comment
Dr. Wisoff gave us a quick post-surgical report, even before surgery was over (Dr. Harter was overseeing the closing procedure). 0 July 14th, 2009 | Tags: Aidan, Dr. Harter, Dr. Wisoff, facial paralysis, hearing loss, hydrocephalus, metastasis, NYU Medical Center, posterior fossa syndrome, sedation, swallowing | Category: Neurological Deficits, Perspective on Cancer, Post-Neurosurgery | Leave a comment
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2011 St. Jude Give Thanks. Walk (Nov. 19)Please join us in helping St. Jude! On Saturday, November 19, we are participating in the New York City St. Jude Give Thanks. Walk across the Brooklyn Bridge, though we originally registered for the one in Meriden, CT. (Confusing, I know, but we like to keep people on their toes.) There are 80 walks across the country, and registration is free if you would like to participate. Support our team or create your own to help in the fundraising. Even a few dollars make a difference. Our fundraising page: https://waystohelp.stjude.org/sjVPortal/public/displayUserPage.do?eventId=175950&programId=601&userId=678655 Colin has received the bulk of his care at St. Jude Children's Research Hospital, which performs invaluable research on childhood cancers and other lifethreatening illnesses and provides its services absolutely free of charge to all patients. We ask that you consider St. Jude for your charitable giving to help reduce suffering and improve the lives of children across the world. St. Jude received a five-star rating on Charity Navigator! Weather in Memphis
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