Colin Loves Tractors » Mass General

A What Transplant?!

Mom — Thu, 20 Aug 2009 03:09:16 +0000

Today, we continued to put Colin through the paces. He sat up in bed a few times, sat in Mom’s lap, sat much more upright when he was in bed, and (drum roll, please) started on the tilt table with physical therapy today. It’s a fairly self-explanatory device that makes him look like he’s about [...]

Five Millimeters

Mom — Wed, 19 Aug 2009 04:09:42 +0000

Colin had a great day today. He sat up several times and is getting more opportunity to hold his head erect (more or less). We had speech therapy and physical therapy visit today, and we have asked that the swallow specialist return because Colin is definitely clearing his secretions better from his throat, suggesting that [...]

Revamping

Mom — Mon, 17 Aug 2009 17:05:30 +0000

Well, the official read of Thursday’s MRI is in: no metastasis! The oncologists here are recommending that we go to Boston for proton therapy within the next two weeks.

The scans are on their way to Boston and Memphis and we will get our second opinions. Obviously, the plan to go to Memphis is on hold. [...]

Two Steps Forward…

Mom — Thu, 30 Jul 2009 01:40:56 +0000

Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough. He received an oxygen blow-by all day and wore a mask when venturing out on the stroller. This required the hardware of an oxygen tank on wheels (absent the tank these tend to look [...]

New Belly Button

Mom — Wed, 29 Jul 2009 02:11:11 +0000

On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Over the weekend, Colin appeared to suffer from symptoms of a run of the mill virus and had a few bouts of vomiting.