Colin enjoyed three nights on the prowl (i.e. outpatient) before a planned admission on Friday for chemo to start on Saturday.
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October 24th, 2009 | Tags: diarrhea, Dr. Boop, Dr. Gajjar, Dr. Wisoff, fundraising, H1N1, Hickman line, hydrocephalus, lumbar puncture, metastasis, St. Jude, subcutaneous port, TPN, VP shunt | Category: Chemotherapy, Diagnosis, Effects of Cancer and Treatment, Lessons on Medicine, Neurological Deficits, Neurosurgery, Occupational Therapy, Post-Neurosurgery, Radiation, Speech Therapy, Treatment, Understanding Hospitals | 5 comments
Life in the hospital always has an underlying tension, as the situation can change dramatically over the course of days or moments. Like August 6th, 2009 | Tags: C. Difficile, fungemia, hydrocephalus, leukemia, lumbar puncture, Memorial Sloan Kettering, NYU Medical Center, subcutaneous port | Category: Complications, Death, Music Therapy, Perspective on Cancer, Physical Therapy, Understanding Hospitals | Leave a comment
Colin finally found a way to get private digs at the hospital, but the unfortunate price is the contraction of a highly contagious infection. Like August 3rd, 2009 | Tags: C. Difficile, diarrhea, hydrocephalus, lumbar puncture, Memorial Sloan Kettering, NYU Medical Center, pseudomeningocele, steroids, VP shunt | Category: Complications, Diagnosis, Effects of Cancer and Treatment, Understanding Hospitals | Leave a comment
Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. Like July 31st, 2009 | Tags: Dr. Allen, ependymoma, G-tube, hydrocephalus, insurance, lumbar puncture, Memorial Sloane Kettering, metastasis, NYU Medical Center, steroids, swallowing | Category: Chemotherapy, Decisions, Diagnosis, Effects of Cancer and Treatment, Local Color, Music Therapy, Neurological Deficits, Neurosurgery, Perspective on Cancer, Radiation, Rehabilitation, Understanding Hospitals | Leave a comment
On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. Like July 24th, 2009 | Tags: Aidan, ependymoma, G-tube, Head Start, hydrocephalus, lumbar puncture, Memorial Sloan Kettering, metastasis, NYU Medical Center, oncology, posterior fossa syndrome, Ronald McDonald House, swallowing, VP shunt | Category: Chemotherapy, Decisions, Diagnosis, Effects of Cancer and Treatment, Music Therapy, Neurological Deficits, Perspective on Cancer, Rehabilitation, Understanding Hospitals | Leave a comment
There is no such thing as certainty. Like July 13th, 2009 | Tags: Dr. Wisoff, hydrocephalus, lumbar puncture, NYU Medical Center, ophthalmology, steroids | Category: Diagnosis, Effects of Cancer and Treatment, Lessons on Medicine, Music Therapy, Neurosurgery, Understanding Hospitals | Leave a comment
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Help Colin, Support St. JudeColin has received the bulk of his care at St. Jude Children's Research Hospital, which performs invaluable research on childhood cancers and other lifethreatening illnesses and provides its services absolutely free of charge to all patients. We ask that you consider St. Jude for your charitable giving to help reduce suffering and improve the lives of children across the world. Many of Colin's supporters have donated to St. Jude through Mom's St. Jude Heroes fundraising site (an artifact of the marathon in December), www.mystjudeheroes.org/colin. |
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