Colin Loves Tractors » Le Bonheur

Full Circle

Mom — Sun, 12 Jun 2011 07:20:29 +0000

Colin returned home, nearly a year from the completion of radiation and two months short of his fourth birthday, with a good scan and no trach. Well, we have plenty of trachs, but none actually inserted in him. Anticipation of the possibility that Colin would come home without that annoying, formerly life saving appliance swept [...]

True North

Mom — Sun, 20 Feb 2011 05:24:41 +0000

Colin is in remission, and it now seems easier to utter the words aloud. His scan from January was still “stable,” with Dr. Gajjar now asserting that the sliver of “whatever” that cradles Colin’s brain stem is scar tissue. He further stressed that surgery would not help and would only cause more damage (duh!). All [...]

Reset Button

Mom — Fri, 26 Mar 2010 17:43:52 +0000

Colin’s second week of radiation was grueling: vomiting, utter fatigue, dangerous aspiration and an unexpected stay in the hospital. The third week (days 9 – 13) was a completely different story. After going back inpatient at St. Jude, Colin slept for two days straight, waking on Friday morning at 4 am to let me know [...]

Predator vs. Alien

Mom — Thu, 18 Feb 2010 06:08:38 +0000

Since finding out about Colin’s blood clot, we have settled into a normal non-medically intense lifestyle punctuated by the possibility of crisis. On Superbowl Sunday, Colin became inexplicably agitated and then very spaced out, eyes unfocused and suddenly falling asleep sitting up. The pseudomeningocele on the back of his head had become an even larger, [...]

Sword of Damocles

Mom — Sat, 06 Feb 2010 23:55:14 +0000

Colin is always full of surprises and has continued to not disappoint us. It would be funny if it weren’t so worrisome, with Friday bringing the need for another burst of medical education.

Friday, Colin had his two week post-op MRI to determine the disposition of residual tumor. As we all had suspected, there is a [...]

Home Sweet St. Jude

Mom — Thu, 28 Jan 2010 06:44:36 +0000

Life doesn’t offer real do-overs, but there are times when an experience follows the parallel track of something that has come before. Returning to St. Jude after less than a week at Le Bonheur, I had the feeling that I was given the opportunity to completely repeat the past but improved in every way.

Rewind

When we [...]

Rising Storm

Mom — Mon, 25 Jan 2010 15:24:53 +0000

On Sunday afternoon, I left Le Bonheur to pick up a few things at the grocery store, walking out of the sterile air into the openness of a springlike day. The sun was bright and the air a pleasantly neutral temperature, but the sky betrayed another mood in the dark gray distance.

By the time I [...]

The Jury Foreman Speaks

Mom — Sat, 23 Jan 2010 02:35:50 +0000

When juries wrap up quickly with a verdict, it can be a good sign or a bad sign, but it usually means that they have found the suspect not guilty. In this case, the jury adjourned hours earlier than expected to report that our little suspect is not guilty of having visible tumor.

At the time [...]

They’re In

Mom — Fri, 22 Jan 2010 16:37:01 +0000

Colin went down for surgery at around 7:00 am and I left him in the OR about 45 minutes later. We got a call from the OR nurse at around 8:45 saying that Dr. Boop had just “gone in.” An hour later, they pulled out the microscope. For Dr. Boop’s team, the real works begins. [...]