Colin finally found a way to get private digs at the hospital, but the unfortunate price is the contraction of a highly contagious infection. Continue reading A Room With a Poo
Tag: hydrocephalus
(little)manscaping
Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy. Continue reading (little)manscaping
New Belly Button
On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux. Continue reading New Belly Button
Awaiting the G-Tube
On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail. Continue reading Awaiting the G-Tube
Post-Surgical Review
Dr. Wisoff gave us a quick post-surgical report, even before surgery was over (Dr. Harter was overseeing the closing procedure). Continue reading Post-Surgical Review
Tuesday Surgery
There is no such thing as certainty. Continue reading Tuesday Surgery
ER Visit
Last night, Colin woke up in pain. Continue reading ER Visit
…And Still Planning
Today, we had the meeting with the surgeons and oncologist to discuss our treatment plan for Colin. Continue reading …And Still Planning
Still Planning
Tuesday morning, we had scheduled a meeting with the two neurosurgeons and oncologist, but due to logistical snafus, it never took place. Continue reading Still Planning
New Digs
The weekend was a blur, with several visitors and the excitement of a pending move “upstairs” to the regular pediatric area. Continue reading New Digs