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Colin finally found a way to get private digs at the hospital, but the unfortunate price is the contraction of a highly contagious infection.
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Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy.
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On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux.
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On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail.
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Dr. Wisoff gave us a quick post-surgical report, even before surgery was over (Dr. Harter was overseeing the closing procedure).
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There is no such thing as certainty.
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Last night, Colin woke up in pain.
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Today, we had the meeting with the surgeons and oncologist to discuss our treatment plan for Colin.
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Tuesday morning, we had scheduled a meeting with the two neurosurgeons and oncologist, but due to logistical snafus, it never took place.
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The weekend was a blur, with several visitors and the excitement of a pending move “upstairs” to the regular pediatric area.
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Support Camp Sunshine: Freezin’ for a Reason Camp Sunshine is an incredible place for families with children with lifethreatening illnesses to find support. It costs $2,000 for a week of camp. Though much of the work is done by volunteers, they provide three meals a day for everybody and much much more.
Please help us keep the wheels turning so we can help make sure more families can experience this wonderful community. We are participating in the New Haven polar plunge on Saturday, February 25.
Visit our fundraising page to donate a few dollars to a great cause (four stars on Charity Navigator, the highest rating they give). |
