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Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy.
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Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough.
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Today, among other things, the family went off to a Ronald McDonald House outing for GiantKids (children with cancer).
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On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail.
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The unlayering of knowledge and understanding that comes with the process of an unfolding medical situation is distressing, frustrating and immutable.
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Support Camp Sunshine: Freezin’ for a Reason Camp Sunshine is an incredible place for families with children with lifethreatening illnesses to find support. It costs $2,000 for a week of camp. Though much of the work is done by volunteers, they provide three meals a day for everybody and much much more.
Please help us keep the wheels turning so we can help make sure more families can experience this wonderful community. We are participating in the New Haven polar plunge on Saturday, February 25.
Visit our fundraising page to donate a few dollars to a great cause (four stars on Charity Navigator, the highest rating they give). |
