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I’m Considering, I’m Considering…

Colorblind James Experience is much more obscure than Paul Simon, but fortunately they have a MySpace page, so anyone unfamiliar with the band can find their tune “Considering a Move to Memphis” online.
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(little)manscaping

Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy.

New Belly Button

On Monday, Colin had surgery to install a G-tube (a second bionic belly button next to the organic original) and perform a fundoplication, which serves to prevent reflux.

Our GiantKid

Today, among other things, the family went off to a Ronald McDonald House outing for GiantKids (children with cancer).

Awaiting the G-Tube

On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail.

Bound for the Big Apple

Today, we made a big decision regarding Colin’s treatment: we will be taking him to New York City for surgery on Wednesday by Dr. Jeffrey Wisoff of NYU.

ER Visit

Last night, Colin woke up in pain.

Making Pinocchio a Real Boy

Colin has really enjoyed becoming a boy again, rather than a patient or freak.

Still Planning

Tuesday morning, we had scheduled a meeting with the two neurosurgeons and oncologist, but due to logistical snafus, it never took place.

New Digs

The weekend was a blur, with several visitors and the excitement of a pending move “upstairs” to the regular pediatric area.

Camp Sunshine is an incredible place for families with children with lifethreatening illnesses to find support. It costs $2,000 for a week of camp. Though much of the work is done by volunteers, they provide three meals a day for everybody and much much more.

Please help us keep the wheels turning so we can help make sure more families can experience this wonderful community. We are participating in the New Haven polar plunge on Saturday, February 25.

Visit our fundraising page to donate a few dollars to a great cause (four stars on Charity Navigator, the highest rating they give).

Colin Loves Tractors

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