Colin Loves Tractors » Dr. Mohan

Indestructible

Mom — Thu, 17 Nov 2011 05:03:21 +0000

Before launching into the latest long-overdue update, I want to post information about the 2011 St. Jude Give Thanks. Walk that is taking place across the country this weekend. We are going to New York City on Saturday, November 19, to support the hospital in a walk across the Brooklyn [...]

Parallels and Contrasts

Mom — Wed, 16 Jun 2010 03:32:40 +0000

It is all too easy to feed off of birthdays, anniversaries, and other meaningful demarcations of time. How long since, how long until? In the x days since returning home, we have done y activities and Colin has achieved z milestones, giving us something to plot and chart in three dimensions.

In Memphis, I had imagined [...]

Bound for the Big Apple

Mom — Sat, 11 Jul 2009 04:31:10 +0000

Today, we made a big decision regarding Colin’s treatment: we will be taking him to New York City for surgery on Wednesday by Dr. Jeffrey Wisoff of NYU. This may be an abrupt change in plans for many who have been following Colin’s care.

We had anticipated receiving a second opinion from Dana Farber/Boston Children’s Hospital’s [...]

Making Pinocchio a Real Boy

Mom — Mon, 06 Jul 2009 00:50:31 +0000

Colin has really enjoyed becoming a boy again, rather than a patient or freak. Although he enjoyed the quasi-liberation of the cart at the hospital, it was a poor replacement for a return to human society.

Even though Colin has big physical limitations compared to his pre-admission condition, he is now able to sit independently (without [...]

…And Still Planning

Mom — Thu, 02 Jul 2009 01:19:57 +0000

Today, we had the meeting with the surgeons and oncologist to discuss our treatment plan for Colin. It was a difficult discussion because we also went over the possible complications and likely recovery period. It is nearly certain that Colin will lose all or some of the hearing in the right ear because of the [...]

Still Planning

Mom — Wed, 01 Jul 2009 01:58:44 +0000

Tuesday morning, we had scheduled a meeting with the two neurosurgeons and oncologist, but due to logistical snafus, it never took place. We saw Dr. Mohan for the first time in a week and chatted for a bit about Colin’s progress, and Dr. Tobias gave us a copy of an article on surgery for a [...]

Homeward Bound-ish

Mom — Fri, 26 Jun 2009 04:12:48 +0000

On Thursday morning, the neurosurgery team decided to clamp Colin’s drain to see how the intracranial pressure fares. If all continues to go well, we can consider removing the drain and moving Colin upstairs to the regular pediatric unit for continued observation.

As for the question of returning home to the next surgery, Dr. Tobias said it [...]

Changes and new experiences

Mom — Tue, 23 Jun 2009 01:50:18 +0000

Monday was a whirlwind. The hospital environment is very strange, where it seems that nothing is happening but different practitioners constantly drop by and the next thing you know, the day is over.

We received many visits from Colin’s neurosurgery/oncology team. The first was from Dr. Mohan, who is leaving town for a week but wanted [...]