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The Little Engine

Colin has made some big leaps ahead, and we can now really see the strength of his determination.

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Iron Man, not Iron Lungs

Colin has finished the methotrexate infusion that kicked off the second round of chemo.

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Colin, the Blue(s) Man of Memphis

Now for a long and eventful update.

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Music Therapy Videos

Here are video links to music therapy from NYU and a special moment between Colin and Amy Grant.

NYU Martha :

Video 1- http://www.youtube.com/watch?v=TGCXJGHjz_c

Video 2- http://www.youtube.com/watch?v=LGy4vRASnM0

Amy Grant – Singing the Colin Blues Song:

http://www.youtube.com/watch?v=LObHCl63boU
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Home Sweet Home

Our first big news: Aidan completed the Grand Array at school on Wednesday.

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Video of Colin Doing PT

Here are the links to videos of Colin doing PT:

http://www.youtube.com/watch?v=jGz2bUPn7zU

http://www.youtube.com/watch?v=HyhnCYSkI0w

When the child was a child
It walked with its arms swinging,
wanted the brook to be a river,
the river to be a torrent,
and this puddle to be the sea

When the child was a child,
it didn’t know that it was a child,
everything was soulful,
and all souls were one…

–Handke

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On the Upswing

Tuesday morning, we found out that Colin’s immune system has already started to rebound.

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Our Colin of the Contradictions

On Sunday night, Colin spiked a fever and the team immediately started him on antibiotics that they were poised to deliver.

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Hello, Neutropenia!

Initially, the reluctance to release Colin from the hospital was related to timing and the fact that we had still not worked out the kinks with managing his secretions.

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Putting the Fundo to the Test

After Colin’s sudden swelling on Sunday, Monday started off relatively placid.

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