Postings by Category

Archives

Full Circle

Colin returned home, nearly a year from the completion of radiation and two months short of his fourth birthday, with a good scan and no trach.

0

True North

Colin is in remission, and it now seems easier to utter the words aloud. His scan from January was still “stable,” with Dr. Gajjar now asserting that the sliver of “whatever” that cradles Colin’s brain stem is scar tissue.

0

Finding the Narrow Path

Life is normal, or at least a simulacrum of normalcy that is close enough to count.

0

Put Me in, Coach

As Colin’s trajectory moves unevenly but steadily upward, we have also been taking him out into the world to finally do what he could not a year ago.

0

Parallels and Contrasts

It is all too easy to feed off of birthdays, anniversaries, and other meaningful demarcations of time.

0

Reset Button

Colin’s second week of radiation was grueling: vomiting, utter fatigue, dangerous aspiration and an unexpected stay in the hospital.

0

Sword of Damocles

Colin is always full of surprises and has continued to not disappoint us.

0

Out of the Nest

Colin Mugging for the Camera at Le Bonheur (Post-Ops)

Our little fledgling has returned to Target House for good, following his last inpatient stay at St. Jude (barring unexpected events, of course).

0

I'm In!

The news of the impending loss of Colin’s port was sobering, but we put it behind us as we launched into the holiday weekend.

[imagebrowser id=14]

0

The Best Laid Plans…

With surgery set for Wednesday, Monday was a big prep day for Colin, but he demonstrated yet again that our careful planning can be rendered irrelevant by the result of a single blood culture.

0