Colin Loves Tractors » Occupational Therapy

Finding the Narrow Path

Mom — Sat, 25 Dec 2010 09:11:14 +0000

Life is normal, or at least a simulacrum of normalcy that is close enough to count. Since the last scan (in sum, stable), Colin has started school again and is finally able to live without the specter of chemo hanging over his head. If he’s tired, he’s just tired and maybe coming down with something. [...]

Out of the Nest

Mom — Mon, 01 Feb 2010 05:20:12 +0000

Colin Mugging for the Camera at Le Bonheur (Post-Ops)

Our little fledgling has returned to Target House for good, following his last inpatient stay at St. Jude (barring unexpected events, of course).

While we will spend every week day at St. Jude, our trips to the second floor will be restricted to social calls. This milestone [...]

I’m In!

Mom — Wed, 20 Jan 2010 17:40:38 +0000

The news of the impending loss of Colin’s port was sobering, but we put it behind us as we launched into the holiday weekend.

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Even at St. Jude, things slow down over three-day weekends, and during this period we only had one appointment, a lab check on Sunday to see how his magnesium was doing.

On [...]

The Best Laid Plans…

Mom — Tue, 12 Jan 2010 17:12:59 +0000

With surgery set for Wednesday, Monday was a big prep day for Colin, but he demonstrated yet again that our careful planning can be rendered irrelevant by the result of a single blood culture. In short, Colin does not head to Le Bonheur for surgery, not yet at least. As it stands, his surgery has [...]

One-Upmanship

Mom — Sun, 10 Jan 2010 17:53:49 +0000

After Thursday’s flood of good news, it seemed impossible that the trend would continue.

However, Colin wasn’t having any of that. Friday’s first big event was the transesophogeal echocardiogram, which was quick but required sedation.

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Dr. Joshi #1 (the cardiologist) came to take another look at the vegetation in Colin’s heart. Predictably, it took longer to [...]

Colin’s MRI Results… and so Much More

Mom — Sat, 24 Oct 2009 19:22:49 +0000

Colin enjoyed three nights on the prowl (i.e. outpatient) before a planned admission on Friday for chemo to start on Saturday. He enjoyed his time out on the town, and it was great once again to have the family in one place. This was also our trial run of the new home health agency, which [...]

Video of Colin doing OT Oct. 1 2009

Dad — Sat, 03 Oct 2009 18:52:37 +0000

Here are links to Colin doing OT:

Video 1 (of 2) Colin sending kisses : http://www.youtube.com/watch?v=a3t2TPq1Brw

Video 2 (of 2) Colin playing with a beach ball : http://www.youtube.com/watch?v=ST3sFmdcxSU

Still in the Klink

Mom — Mon, 10 Aug 2009 04:22:26 +0000

We have definitely deferred bringing Colin “home” to the Target House until we (read: the medical team) have resolved some of the lingering issues whose causes are not 100% certain. For one thing, we are suctioning his trach like crazy. The doctors need to resolve whether we think he is secreting more or managing his [...]