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Colin is officially chemoed out.
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Now for a long and eventful update.
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Here are video links to music therapy from NYU and a special moment between Colin and Amy Grant.
NYU Martha :
Video 1- http://www.youtube.com/watch?v=TGCXJGHjz_c
Video 2- http://www.youtube.com/watch?v=LGy4vRASnM0
Amy Grant – Singing the Colin Blues Song:
http://www.youtube.com/watch?v=LObHCl63boU
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Colin is in the ICU recovering from the installation of a trach tube.
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We have definitely deferred bringing Colin “home” to the Target House until we (read: the medical team) have resolved some of the lingering issues whose causes are not 100% certain.
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Life in the hospital always has an underlying tension, as the situation can change dramatically over the course of days or moments.
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Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy.
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Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough.
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On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail.
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There is no such thing as certainty.
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2011 St. Jude Give Thanks. Walk (Nov. 19) Please join us in helping St. Jude! On Saturday, November 19, we are participating in the New York City St. Jude Give Thanks. Walk across the Brooklyn Bridge, though we originally registered for the one in Meriden, CT. (Confusing, I know, but we like to keep people on their toes.)
There are 80 walks across the country, and registration is free if you would like to participate. Support our team or create your own to help in the fundraising. Even a few dollars make a difference.
Our fundraising page: https://waystohelp.stjude.org/sjVPortal/public/displayUserPage.do?eventId=175950&programId=601&userId=678655
Colin has received the bulk of his care at St. Jude Children's Research Hospital, which performs invaluable research on childhood cancers and other lifethreatening illnesses and provides its services absolutely free of charge to all patients. We ask that you consider St. Jude for your charitable giving to help reduce suffering and improve the lives of children across the world. St. Jude received a five-star rating on Charity Navigator!
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