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Chemoed Out

Colin is officially chemoed out.

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Colin, the Blue(s) Man of Memphis

Now for a long and eventful update.

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Music Therapy Videos

Here are video links to music therapy from NYU and a special moment between Colin and Amy Grant.

NYU Martha :

Video 1- http://www.youtube.com/watch?v=TGCXJGHjz_c

Video 2- http://www.youtube.com/watch?v=LGy4vRASnM0

Amy Grant – Singing the Colin Blues Song:

http://www.youtube.com/watch?v=LObHCl63boU

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Breathing Easy

Colin is in the ICU recovering from the installation of a trach tube.

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Still in the Klink

We have definitely deferred bringing Colin “home” to the Target House until we (read: the medical team) have resolved some of the lingering issues whose causes are not 100% certain.

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Kiss Your Baby Now

Life in the hospital always has an underlying tension, as the situation can change dramatically over the course of days or moments.

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(little)manscaping

Colin may have a budding career as a Geico caveman, or perhaps a more mundane sideshow act as a wolf boy.

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Two Steps Forward…

Today, Colin was definitely less sleepy although still quite congested and having a hard time keeping his oxygen saturation high enough.

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Awaiting the G-Tube

On Wednesday, Colin was scheduled to repeat the swallow study, though it was widely thought that he would likely fail.

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Tuesday Surgery

There is no such thing as certainty.

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