Colin Loves Tractors » Rehabilitation

Summer Kick-Started with a Scan

Mom — Wed, 07 Sep 2011 05:47:21 +0000

Even on the cusp of summer, Memphis is unforgivingly hot, but the weather is nearly irrelevant when you’re back for check-ups at St. Jude, which we were at the end of June. I packed instead for the climate-controlled stasis of the hospital and the expectation that our days would devolve into a mad dash of [...]

Full Circle

Mom — Sun, 12 Jun 2011 07:20:29 +0000

Colin returned home, nearly a year from the completion of radiation and two months short of his fourth birthday, with a good scan and no trach. Well, we have plenty of trachs, but none actually inserted in him. Anticipation of the possibility that Colin would come home without that annoying, formerly life saving appliance swept [...]

True North

Mom — Sun, 20 Feb 2011 05:24:41 +0000

Colin is in remission, and it now seems easier to utter the words aloud. His scan from January was still “stable,” with Dr. Gajjar now asserting that the sliver of “whatever” that cradles Colin’s brain stem is scar tissue. He further stressed that surgery would not help and would only cause more damage (duh!). All [...]

Finding the Narrow Path

Mom — Sat, 25 Dec 2010 09:11:14 +0000

Life is normal, or at least a simulacrum of normalcy that is close enough to count. Since the last scan (in sum, stable), Colin has started school again and is finally able to live without the specter of chemo hanging over his head. If he’s tired, he’s just tired and maybe coming down with something. [...]

Put Me in, Coach

Mom — Sun, 19 Sep 2010 15:10:10 +0000

As Colin’s trajectory moves unevenly but steadily upward, we have also been taking him out into the world to finally do what he could not a year ago. At the same time, we are still at the phase where we turn back the mental clock by a year, reminding ourselves of what Colin’s life was [...]

Parallels and Contrasts

Mom — Wed, 16 Jun 2010 03:32:40 +0000

It is all too easy to feed off of birthdays, anniversaries, and other meaningful demarcations of time. How long since, how long until? In the x days since returning home, we have done y activities and Colin has achieved z milestones, giving us something to plot and chart in three dimensions.

In Memphis, I had imagined [...]

Reset Button

Mom — Fri, 26 Mar 2010 17:43:52 +0000

Colin’s second week of radiation was grueling: vomiting, utter fatigue, dangerous aspiration and an unexpected stay in the hospital. The third week (days 9 – 13) was a completely different story. After going back inpatient at St. Jude, Colin slept for two days straight, waking on Friday morning at 4 am to let me know [...]

Sword of Damocles

Mom — Sat, 06 Feb 2010 23:55:14 +0000

Colin is always full of surprises and has continued to not disappoint us. It would be funny if it weren’t so worrisome, with Friday bringing the need for another burst of medical education.

Friday, Colin had his two week post-op MRI to determine the disposition of residual tumor. As we all had suspected, there is a [...]

Out of the Nest

Mom — Mon, 01 Feb 2010 05:20:12 +0000

Colin Mugging for the Camera at Le Bonheur (Post-Ops)

Our little fledgling has returned to Target House for good, following his last inpatient stay at St. Jude (barring unexpected events, of course).

While we will spend every week day at St. Jude, our trips to the second floor will be restricted to social calls. This milestone [...]

Home Sweet St. Jude

Mom — Thu, 28 Jan 2010 06:44:36 +0000

Life doesn’t offer real do-overs, but there are times when an experience follows the parallel track of something that has come before. Returning to St. Jude after less than a week at Le Bonheur, I had the feeling that I was given the opportunity to completely repeat the past but improved in every way.

Rewind

When we [...]