Colin Loves Tractors Follow Colin's progress through treatment for a brain tumor

September 10, 2016

The Perpetual Outlier

Colin has had a wonderful summer and really relished being at home. Most significantly, he has enjoyed a renaissance of himself: he is engaged, motivated, curious and vibrant. If Colin finds an adult to buttonhole in a conversation, his engine will start and keep going. On our return from Memphis, he consumed the entire flight from Philadelphia to Ithaca regaling a new friend on a variety of subjects. The real resurgence started shortly after leaving Memphis and has only continued since then.

Colin Takes on the World

Colin Takes on the World

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August 28, 2015

Declaration and Decisions

Going into surgery, we knew that we would learn valuable information that would drive treatment decisions. The surgery itself promised to be rather ho-hum, endoscopically performed through either one or two holes, and resulting in a very modest recovery time. The anxiety wasn’t about the procedure itself but the findings. (more…)

August 27, 2015

Memphis Sunrise

The day before neurosurgery is a frustrating combination of interminable waiting punctuated by the frantic urgency to act, all conducted without benefit of even the vaguest structure. It stands in sharp contrast to the dense scheduling of one of our typical days at St. Jude, spent shuttling from one meticulously scheduled slot to another (minus E Clinic, the clinic for brain tumor patients, which is beholden to no clock born of human devising), and it is endemic of the inpatient environment we have encountered at any hospital. Already in the system, it is a simple matter to add another test or procedure through hidden incantations conducted in the obscurity of the famed work room. However, this comes with a price; upon admission, the patient becomes the sworn legal property of the hospital and therefore liege to its whims of timing. (more…)

September 19, 2010

Put Me in, Coach

As Colin’s trajectory moves unevenly but steadily upward, we have also been taking him out into the world to finally do what he could not a year ago. (more…)

April 12, 2010

Operation Radiation

Colin’s final radiation treatments found us at Methodist Central, an adult hospital not far from St. Jude in midtown Memphis. (more…)

February 18, 2010

Predator vs. Alien

Since finding out about Colin’s blood clot, we have settled into a normal non-medically intense lifestyle punctuated by the possibility of crisis. (more…)

February 6, 2010

Sword of Damocles

Colin is always full of surprises and has continued to not disappoint us. (more…)

January 28, 2010

Home Sweet St. Jude

Life doesn’t offer real do-overs, but there are times when an experience follows the parallel track of something that has come before. (more…)

December 18, 2009

No Mo’ Chemo!

The last chemo precaution sign. This indicates the time of the administration and how long we need to properly dispose of diapers and so forth (48 hours after the drug has finished being administered).

The last chemo precaution sign. This indicates the time of the administration and how long we need to properly dispose of diapers and so forth (48 hours after the drug has finished being administered).

Well, it’s official: Colin’s I.V. chemo is done. He received a dose of vincristine Thursday afternoon at 3:22 pm. (more…)

December 3, 2009

Expressing Thanks

Every year, Thanksgiving is an opportunity for many things, the most honorable of which is the recognition of what we as individuals are thankful for and humility for having so much when there are people who have so little. (more…)

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