Comments on: Trick or Treat http://www.colinlovestractors.com/archives/151 Follow Colin's progress through treatment for a brain tumor Tue, 09 Mar 2010 06:44:56 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: Dick Hayward http://www.colinlovestractors.com/archives/151/comment-page-1#comment-32 Dick Hayward Mon, 02 Nov 2009 15:06:03 +0000 http://www.colinlovestractors.com/?p=151#comment-32 If one of the three is inhibited at all, I'm guessing it might be least threatening for it to be the tri-cuspid wot? what good timing, to have this problem post-FDA approval of the newer anti-fungal!! He just continues to be a talented and gifted patient! rwh If one of the three is inhibited at all, I’m guessing it might be least threatening for it to be the tri-cuspid wot? what good timing, to have this problem post-FDA approval of the newer anti-fungal!! He just continues to be a talented and gifted patient!

rwh

]]> By: Wark http://www.colinlovestractors.com/archives/151/comment-page-1#comment-31 Wark Mon, 02 Nov 2009 05:22:38 +0000 http://www.colinlovestractors.com/?p=151#comment-31 As you describe your adventure, I'm reminded of the recurring theme in The Lord Of The Rings of "help un-looked for". There are times when our adventurers seek out help and they find it, other times when they seek it and are denied, and sometimes help just appears, out of the clear blue sky - like the Eagles. Here's hoping that the help you need finds its' way to you. PS - testiness about costumes is not limited to boys who've been feeling like pincushions. Believe me, I know. As you describe your adventure, I’m reminded of the recurring theme in The Lord Of The Rings of “help un-looked for”. There are times when our adventurers seek out help and they find it, other times when they seek it and are denied, and sometimes help just appears, out of the clear blue sky – like the Eagles.
Here’s hoping that the help you need finds its’ way to you.
PS – testiness about costumes is not limited to boys who’ve been feeling like pincushions. Believe me, I know.

]]> By: vtblues http://www.colinlovestractors.com/archives/151/comment-page-1#comment-30 vtblues Sun, 01 Nov 2009 07:15:41 +0000 http://www.colinlovestractors.com/?p=151#comment-30 I want to introduce myself to you all. My name is Jeff Marshall from Brookfield VT. I was made aware of Colin by Mark through Team Helix Folding@Home. Colin has been in my prayers since I first heard about him, and he will remain in my prayers, thank you for this opportunity. I want to introduce myself to you all. My name is Jeff Marshall from Brookfield VT. I was made aware of Colin by Mark through Team Helix Folding@Home. Colin has been in my prayers since I first heard about him, and he will remain in my prayers, thank you for this opportunity.

]]> By: Mom http://www.colinlovestractors.com/archives/151/comment-page-1#comment-29 Mom Sun, 01 Nov 2009 05:27:32 +0000 http://www.colinlovestractors.com/?p=151#comment-29 Mark, it was great that you were able to come and help out. As I mentioned in the post, we get help from so many people in so many ways, and we are grateful that you were able to break away and give us that time while I was out of town. Because of the logistical difficulties when I travel, we're not planning on a repeat while Colin is going through chemo. Thanks again! Mark, it was great that you were able to come and help out. As I mentioned in the post, we get help from so many people in so many ways, and we are grateful that you were able to break away and give us that time while I was out of town. Because of the logistical difficulties when I travel, we’re not planning on a repeat while Colin is going through chemo. Thanks again!

]]> By: markhayward http://www.colinlovestractors.com/archives/151/comment-page-1#comment-27 markhayward Sun, 01 Nov 2009 03:07:45 +0000 http://www.colinlovestractors.com/?p=151#comment-27 I heard of the large effort over at your house back home. It's cool how I was there trying to do something useful while they were up there definitely being helpful. I hope Colin was not upset about me leaving, as well I hope Aiden wasn't hurt either. I remain ready and willing to come back down there more times to chip in and any suggestions on how I might do anything better I am all ears. Please tell Colin and Aiden that their uncle loves them and tell Aiden he doesn't have to take a goodnight kiss or hug if he doesn't want to, I just want him to know that he and his brother are very precious to me. Bless you all, Bless the doctors, and bless the staff there and at Target house. I heard of the large effort over at your house back home. It’s cool how I was there trying to do something useful while they were up there definitely being helpful.

I hope Colin was not upset about me leaving, as well I hope Aiden wasn’t hurt either.

I remain ready and willing to come back down there more times to chip in and any suggestions on how I might do anything better I am all ears.

Please tell Colin and Aiden that their uncle loves them and tell Aiden he doesn’t have to take a goodnight kiss or hug if he doesn’t want to, I just want him to know that he and his brother are very precious to me.

Bless you all, Bless the doctors, and bless the staff there and at Target house.

]]> By: Mom http://www.colinlovestractors.com/archives/151/comment-page-1#comment-26 Mom Sat, 31 Oct 2009 22:06:30 +0000 http://www.colinlovestractors.com/?p=151#comment-26 Nobody specified the valve, but they did specify the chamber (right atrium), implying the tricuspid valve, as far as I can tell. Fortunately, the vegetation is "small," according to the cardiologist. Also, this condition, technically "endocardiosis," is quite unusual here. We understand that the I.D. attending who has been here for 27 years has seen a handful of cases (literally on the order of five), with fewer of these due to fungemia. As always, our boy has a knack for beating the odds! We are lucky for advances in medication for fungal infections and St. Jude's enthusiasm to use this expensive but effective and well tolerated medicine (it is so well tolerated that it can be used during chemo; Ampoteracin B, which used to be the biggest gun in the arsenal, is incompatible with chemo because it is too toxic). Colin may need to take it for six months, with a minimum course of six weeks or so (dated from the last negative blood culture). Nobody specified the valve, but they did specify the chamber (right atrium), implying the tricuspid valve, as far as I can tell. Fortunately, the vegetation is “small,” according to the cardiologist. Also, this condition, technically “endocardiosis,” is quite unusual here. We understand that the I.D. attending who has been here for 27 years has seen a handful of cases (literally on the order of five), with fewer of these due to fungemia.

As always, our boy has a knack for beating the odds!

We are lucky for advances in medication for fungal infections and St. Jude’s enthusiasm to use this expensive but effective and well tolerated medicine (it is so well tolerated that it can be used during chemo; Ampoteracin B, which used to be the biggest gun in the arsenal, is incompatible with chemo because it is too toxic). Colin may need to take it for six months, with a minimum course of six weeks or so (dated from the last negative blood culture).

]]> By: Dick Hayward http://www.colinlovestractors.com/archives/151/comment-page-1#comment-24 Dick Hayward Sat, 31 Oct 2009 12:39:24 +0000 http://www.colinlovestractors.com/?p=151#comment-24 T: As you know. I am a cardiology enthusiast; whereas the three valves in the heart are each strategically different portals of blood flow to very different aspects of Colin's physiology, your having told us "a heart valve has become a nesting place of fungal habitation" (sic), inspires an interest in learning which of the three valves is so corrupted - as that particular part of his hemo-aqui-ology will be the more impeded by the friction of the vegetation, as well as the restriction of tactile flexibility of the valve in question. This casual reference (a valve) suggests to me that this particular valve's logistics must be useful information in pursuing Colin's life support. When you speak with the wizards, you might ask? Which valve? Pop T: As you know. I am a cardiology enthusiast; whereas the three valves in the heart are each strategically different portals of blood flow to very different aspects of Colin’s physiology, your having told us “a heart valve has become a nesting place of fungal habitation” (sic), inspires an interest in learning which of the three valves is so corrupted – as that particular part of his hemo-aqui-ology will be the more impeded by the friction of the vegetation, as well as the restriction of tactile flexibility of the valve in question. This casual reference (a valve) suggests to me that this particular valve’s logistics must be useful information in pursuing Colin’s life support. When you speak with the wizards, you might ask? Which valve?

Pop

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